Thursday, August 30, 2018

Do Some Googleing

Day two (in a row that I am writing in my blog). Day two million - or so it feels - that I am in such bad and unextinguishing (sp?) pain.
It starts in my toes (or toenails) and creeps up the actual toes and from there shoots up the foot (each one) and into my calves and passed my knees and into my thighs and straight into my forever hurting hips and of course up the spine where it takes its gruesome and beastly turns into the rest of my body (and if you’re wondering; yes, even my hair follicles hurt some days).
I do not expect anyone to completely fathom or interpret the abhorrent agony or beastly burning that I comprehend each and every day. There’s hardly sufficient or even suitable enough words (or variations thereof) to clearly demonstrate what it is I am trying to describe when it comes to my daily struggle - both physical and emotional. I need to rectify my own painful misery and also try to help and encourage my daughter and husband. And they both need to ward off many of their own physical afflictions. Life in our household has become a constant struggle with pain and woeful experiences.

As I stated above; I do not expect everyone to understand what we go through.

 (and this is not a ‘Hey chick, there are those that have it worse.’)

Yes. I fuckin’ know that. I’ve been living underneath that umbrella of thought since my ordeal has started.

Those who have it worse than me and my own?

Read another blog and/or better yet, start your own.

Our spilling over plates just don’t have the adequate space for you and your ‘worse off’ issues.

Anyway.

If you don’t get what we go through; google our issues to at least attempt to perceive and discern them. That’s what I do when I don’t get something. I whip out my smartphone and google the shit out of e.v.e.r.y.t.h.i.n.g.

Back when I was your age, I had to actually go to a set of books called encyclopedias

(What? Encyclopedias? Is that like Wikipedia? Sure sounds like it.) 

to figure shit out. I also frequently visited secret societies called libraries. Libraries were full of encyclopedias and other rectangular shaped items called books that were chock full of Wikipedia information. Then, and only then, did I open my mouth with an opinion on what I did not have previous knowledge of. (the preposition there can kiss my ass)

Good words to google are
- type 1 (that’s one and NOT two) diabetes
- small fiber neuropathy
-dysphagia
- Addison’s Disease
- Graves’ disease

When you’re brushed up on what plagues us everyday, please ask us questions. We’d be happy and actually relieved to answer your insightful queries on our health related problems.


I have had it to my eyeballs hearing how because you know a nurse in a doctor office or your cousins sister great aunts cat had the exact same health problem or problems that you’re now the ‘go-to-guru’ on all things health.

And for those who do not understand but who actually have sympathy and compassion for others who suffer an invisible ailment, thank you for your kindness and understanding. It truly means something to us. It really does.

Facebook and Instagram and all of those other ‘social’ websites are becoming more dopic by the day. So, by allowing stupidity to rear its head over and over again, these social websites are less social and more repulsive.


I hope that there will be days when the world and its goings on will look a bit brighter to me, because right now, all I see is painful despair. And in 2010, before my pain started, despair wasn’t even a word I would look up in the dictionary (oops; I mean I wouldn’t google it)

Let’s try to understand and uplift people. It’ll do a world of good for someone, I promise.

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